@Trae said in Hello!: Hello! I was diagnosed almost 20 years ago after a long and windy road ( which I’m sure is a familiar story). Hi @Trae yes a very familiar story. I have been the same, over 20 years and now I realise actually even longer than that, after an illness with glandular fever when younger. I was never right. Yet it was 22 years ago after a horrid “flu” that knocked my socks right off! I hope you have some support around you? Welcome to here

@donnamarie Many thanks and great advice Writing a guide is on my list (I haven't forgotten - or, more accurately - I have a list and it's on it), but I've been going through a low-spoons patch, so it hasn't happened yet.

@Kristy said in Hi my name is Kristy mother of five diagnosed a couple of years ago used to be a hard worker and sociable I'm age 42 feel like 21 but body and brain 80yo looking for some friends who understand what we are going through : Hi is anyone from Tasmania or are there any good support groups in Melbourne ? Hi Kirsty and welcome! Wow a mum of 5 kids it must be so difficult for you everyday. I unfortunately do not have any kids and I know how hard it is for me without them! So I really feel for you. You should be very proud of yourself as you are doing an amazing job with a horrid illness. This is a good place to be, as we all understand each other. I really hope you have some support from family and friends?

My experience was similar to Katt’s. I was on 4mg and then 6mg for a while, and while I think there may have been a little benefit it wasn’t enough of a difference to be worthwhile. I also had side effects when increasing and decreasing.

You made some good points river and have presented a different point of view. Well, done!