@artist55 Adorable! 🐾

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I hope you feel better soon, @river . Nausea is one of my symptoms too so I know how unpleasant it can be. Here’s hoping it settles down and becomes more manageable 🌼🌼

@bekind Thanks. We'll see what time and study shows.
In the meantime I hope your daughter can manage her symptoms and recover completely.
(I'm in Victoria, but I'm afraid I don't know a specialist to recommend. )
Best wishes

Recognising Severe ME Day.
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@Lau_EA_Aus thank you so much. I hope it makes somebody smile today 😊

@Dot Interesting.

Excerpts:-

"Microscopic abnormalities that affect how oxygen is exchanged from the lungs to the red blood cells."

"What we saw on the MRI was that the transition of the oxygen into the red blood cells was depressed in these symptomatic patients who had had COVID-19, compared to healthy volunteers."

@LJ_64 handy they they also have an H song!

Heads Will Roll, Yeah Yeah Yeahs

@Hucky Kermit has a new friend 🐸😊

@river When I was being diagnosed I had high ANA markers apparently, so the doctor then checked for what auto antibodies (I think that's all the right terms 🤞) might have caused that - I think things like lupus, sjogrens etc. But of course nothing showed up so not sure what that means. So I guess blood tests can diagnose some autoimmune things?

Maybe you would need a biopsy for other types? I know for Coeliac Disease they check with a biopsy if it shows up on a blood test.

@lasagna symptoms like seizures and collapsing are things I've mainly heard about in association with "mechanical basis" ME/CFS. They're pretty unusual for the majority of us.

I don't know if you've encountered the mechanical basis hypothesis, but in summary, a subset of people with ME/CFS have discovered that they have a structural problem with their brain or spine. Off the top of my head, some of the conditions that fall into this category that are associated with ME/CFS are: cervico-cranial instability, atlanto-axial instability, and tethered cord syndrome. There's also cerebrospinal fluid leaks, but I'm not sure if that's known for causing seizures.

Unfortunately these are all relatively rare conditions that require special imaging and experienced interpretation to diagnose. I know about it because I nearly went down this investigative path myself at one point so if you'd like more info on it feel free to send me a private message.

@DramaticHuskie Omg just what you don't need! I hope they sort it out quickly.
Definitely a gentle afternoon needed after that. Sigh.

@Rainbow-Zebra really appreciate that you did. It is one of those scams that looks way more legit than those Amazon package type ones. And like they say in the info you gave, sometimes Medicare will text you (and your local health authority do with positive Covid results) but of course it would be without a link. Crossing my fingers those services can all help.

@river I think you are right and yes there is more work to be done in this space.

@Dot Thank you for posting.

@Dot said in The random cute animal pictures thread:

A beautiful clip here
https://twitter.com/mystoryyy333/status/1547240668996800512

This made my day! Thank you for sharing it 😁 💕

Another timely addition to the ME/CFS lingo provided by Susie Dent

Forwallowed (15th century):
Exhausted from tossing and turning all night.

Although I guess for most of us it's an extra layer of exhaustion on top of the preexisting exhaustion.

Anyway just grateful to be ever so slightly less Forwallowed today so that I can try to make words into sentences.😊

@Linda Hi Linda - My heart goes out to you and your daughter, it is very tuff but you are doing a wonderful job. I am in Perth, Canning Vale. My daughter is also housebound, she is 24 now and been living with ME/CFS now for 10 years also. Wanted to let you know that there is a Peer Support Meeting this week at ME/CFS Lyme Association in Nedlands (Niche Centre) Sunday at 1pm if your interested. I am a new volunteer there and hope to be there on Sunday as well. You can message me by connecting with Emerge Australia if you want to text direct.