Emerge Australia logo

    Emerge Australia ME/CFS Community Forum

    • Register
    • Login
    • Search
    • Categories
    • Unread
    • Recent
    • Tags
    • Popular
    1. Home
    2. Start here
    3. News Network
    Log in to post
    • Newest to Oldest
    • Oldest to Newest
    • Most Posts
    • Most Votes
    • Most Views
    • Lau_EA_Aus

      Severe ME day 8th of August.
      • Lau_EA_Aus

      3
      5
      Votes
      3
      Posts
      26
      Views

      Dot

      Recognising Severe ME Day.
      alt text

    • Dot

      Innovative lung-imaging technique shows cause of long COVID symptoms
      long covid lungs imaging • • Dot

      2
      4
      Votes
      2
      Posts
      21
      Views

      gretch

      @Dot Interesting.

      Excerpts:-

      "Microscopic abnormalities that affect how oxygen is exchanged from the lungs to the red blood cells."

      "What we saw on the MRI was that the transition of the oxygen into the red blood cells was depressed in these symptomatic patients who had had COVID-19, compared to healthy volunteers."

    • Lau_EA_Aus

      Message from the chair of RACGP (Dr Anita Muñoz)
      • Lau_EA_Aus

      3
      5
      Votes
      3
      Posts
      58
      Views

      Lau_EA_Aus

      @river I think you are right and yes there is more work to be done in this space.

    • Dot

      Great episode on ME/CFS and not making the same research mistakes with Long COVID
      • Dot

      2
      2
      Votes
      2
      Posts
      31
      Views

      Lau_EA_Aus

      @Dot Thank you for posting.

    • Dot

      Blood Vessel Attack May Spark Brain Inflammation in Long COVID (and ME/CFS)
      • Dot

      1
      3
      Votes
      1
      Posts
      22
      Views

      No one has replied

    • B

      Long covid brain fog (BBC radio program)
      • blanketfort

      2
      3
      Votes
      2
      Posts
      34
      Views

      Lau_EA_Aus

      @blanketfort
      Thank you for sharing.
      I will definitely have a listen later tonight 💜

    • E

      Message from Emerge Australia regarding forum moderators.
      • EmergeAustralia

      1
      2
      Votes
      1
      Posts
      32
      Views

      No one has replied

    • C

      Dysautonomia International's 10th Annual Conference - broadcasting virtually July 14 - 17, 2022.
      • coco

      1
      5
      Votes
      1
      Posts
      22
      Views

      No one has replied

    • S

      Australian You+ME Registry Opens
      • Sarah_Em_Aus

      28
      10
      Votes
      28
      Posts
      378
      Views

      emsarah

      @river yeah double tracking would be too much

    • emsarah

      ABC Article by Alice Rumble
      • emsarah

      8
      5
      Votes
      8
      Posts
      101
      Views

      emsarah

      @gretch yes I liked that one too. She also did one about her experience with GET for News.com I think.

      I feel very privileged to have at least some news coverage and some ways of connecting with other patients. I can't imagine how even more isolating it must have been before that.

    • Jen_Em_Aus

      Recent media
      • Jen_Em_Aus

      21
      11
      Votes
      21
      Posts
      277
      Views

      Dot

      ABC Radio National 'The Conversation Hour'

      Experts say chronic fatigue sufferers have fought for years for funding and recognition.

      Will a surge in long COVID diagnoses change this?
      Duration: 1hr
      Broadcast: Wed 27 Apr 2022, 11:00am

      https://www.abc.net.au/radio/melbourne/programs/theconversationhour/the-conversation-hour/13848466

    • B

      New German documentary about ME/CFS (available in English)
      • blanketfort

      2
      3
      Votes
      2
      Posts
      91
      Views

      S

      @blanketfort Nice to see another video about MECFS with alot of views. I've probably watched enough of them now to not watch this one but I will give it a like and comment to help with the youtube algorithm!

    • DJamie

      New Research for ME/CFS From Griffith University Brisbane
      • DJamie

      4
      4
      Votes
      4
      Posts
      105
      Views

      Dot

      @DJamie Let's hope they are able to start those clinical trials.

    • A

      EDS - When the Dr has a rare genetic condition
      • Andie

      6
      3
      Votes
      6
      Posts
      103
      Views

      Dot

      @Andie So true. Another condition that we are so bad at understanding, recognising and treating. It is awful how many people slip through the cracks. I am so glad you finally got there, and getting information like this out can help others.

    • K

      Looking for experiences with either pain management or rehabilitation clinics and/or phsyiotherapy
      • KateH_Em_Aus

      4
      3
      Votes
      4
      Posts
      106
      Views

      I

      @iris just checked nice again, it's wishy washy

    • I

      Research on neuroinflammation
      • iris

      3
      5
      Votes
      3
      Posts
      102
      Views

      river

      A number of interesting things in the comments but I particularly want to highlight that this study only uses Fukuda criteria. I am inclined to entirely disregard any studies that do not require all participants to meet ICC criteria, at least in relation to myself, as I meet ICC criteria.

    • Dot

      A good overview of long covid at the moment
      long covid • • Dot

      1
      5
      Votes
      1
      Posts
      57
      Views

      No one has replied

    • Lau_EA_Aus

      2GB radio
      • Lau_EA_Aus

      1
      7
      Votes
      1
      Posts
      71
      Views

      No one has replied

    • I

      The project
      • iris

      4
      2
      Votes
      4
      Posts
      83
      Views

      I

      @emsarah thanks

    • I

      Radio national program and online article
      • iris

      1
      1
      Votes
      1
      Posts
      64
      Views

      No one has replied